new patient checklist

If you think you may have HS, you should interview some doctors (General Medicine, Dermatology, Plastic Surgery). Ask if they have dealt with this disease before. Then see the one you are most comfortable with as a partner in a difficult treatment path. Be familiar with the information provided below before you visit your doctor.

We at HS-USA are often asked for local physician recommendations. We have no way of doing that. However, we can provide YOU, the patient, with a tool to exchange information. If you've found a great doctor, your recommendation may help another sufferer get the quality care he/she deserves.
Please check in with the Doc Exchange!

Things to read, print, and bring to your doctor's appointment

• eMedicine - very comprehensive summary of HS medical information.
  Must read BEFORE you see any doctor!
• Patient Survey Data may be helpful as a conversation aid with your doctor.  Once you have been diagnosed, please remember to take the time to submit the surveys as well.
• A Treatment Challenge (pdf) from the Association for American Family Physicians. A six-page handout to take to your doctor.
• The hs-usa tri-fold brochure.  Print it or order it professionally printed right here from this website. Order a few to put in your doctor's office waiting room.
• Hidradenitis Suppurativa - Jan von der Werth - your doctor must see this!
• Know about Accutane and why it rarely works with HS.
   

So you've been diagnosed and have seen a doctor, but still have lots of questions?  Make sure to look up our HS FAQ. You can find a LOT of info there ranging from the history of hidradenitis, to care tips and book recommendations.

It is very important to connect with other people who suffer from Hidradenitis Suppurativa. Nobody understands your issues and pain as well as someone who suffers them too. There are many of us out there. Contact your state representative and join a regional support group online. Or choose one of the many online groups that matches your interests and character.
You're not alone!