supporting hidradenitis suppurativa patients and medical research

patient support

If you think you have HS, or have just been diagnosed, you probably have a lot of questions and concerns. Start here for a short list of the most important things to do when you're a new HS patient.

HS-USA Help and Information Line

Personalized 24-hour support and advice from Tammie Ferris is available at

1-928-279-0833

Since this is not a toll-free line, please leave a message with your call-back number - you will be called back promptly.

Online Support

Find a discussion group the internet. You'll be assured to find a group, large or small, that matches your interests, locale and needs as an HS sufferer.
You're not alone!

A Contact in Your State

State contacts are close to you and often organize gatherings and events. Many states and regions also have online support groups.

Doctor Exchange

From sufferers to sufferers: Find a knowledgeable doctor near you, or share your great doctor with others!

In this section you will find stories told by people who have been healed from HS. These folks haven't found a cure, but they experienced drastic (if not complete) recovery from their symptoms, and are here to tell - in their own words - how they did it.

[coming soon]

Living With HS

If you're interested in reading notes from sufferers on the dreadful impact this shameful disease has on our lives, this is the place:
HS Personal Stories

resources:
patient support

new patient checklist

online support

state contacts

doctor exchange